We have developed a steady routine which helps keep emotions and struggles in better check. Early on Jan would go to bed at night and one the of signs that was obvious was that the struggles were just causing her to become weary. That was early in the struggles when she would still try to perform some things around the house. The only way that I saw to help was to take those things as my duties and lessen the burden on her. Just getting through the day is a struggle for her and the window for that day seems to be closing. The good time is getting shorter and shorter. She has lost the ability or struggles with all of the activities for daily living. Most of the time she is like a small child, but the child can't learn. The most difficult problem she has however is speaking. She has virtually lost the ability to speak. Sometimes words come out and there are times when she can get a short sentence out that is right, but most of the time you have to try to figure out what she is saying. An associated problem is her yes or no is not definite. She may say yes, but mean no.
Another symptom of her disease is repeating the words she hears. You might be in a conversation with someone and she might stand right beside you and repeat some of the words she is hearing and it's the disease talking and I don't think she even knows she is doing it.
Everyday there seems to be more challenges: taking off her jacket, getting into the car, getting out of the car, brushing her teeth. Just think about what you have learned and think about forgetting how to do that. That's her world. Please prayer for her.
Sunday, March 28, 2010
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